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Third-party-funded project

Title:
Quality of life and needs in patients with chronic heart failure

Project management at the University of Würzburg:

Participating scientists:

Abstract:


Background:

Chronic heart failure is a chronic disease characterized by a high modality, large economic burden and reduced quality of life of patients. In addition, the prevalence of a depression is high among this population with the consequence of lowered compliance with medical treatment and possibly reduced survival. Although the health-related quality of live is considered to be an important treatment outcome, no satisfactory assessment instrument exists yet. Moreover, it is still unclear in which areas of their daily lives patients perceive strongest restrictions and what their needs are regarding information, counseling and support.


Objectives:

The study has two objectives. First, it aims at evaluating the German version of a new disease-specific quality of life questionnaire (Kansas City Cardiomyopathy Questionnaire, KCCQ). Second it aims at assessing the needs of patients regarding information, counseling and support. On the basis of this needs analysis a manualized psycho educational intervention program will be developed.


Study design:

The KCCQ will be psychometrically examined according to the traditional procedures, including item analysis, internal consistency, retest-reliability, construct validity (comparison with the SF-36) discriminative validity (comparison of patients in different NYHA severity classifications), sensitivity to change (two measurement points among patients with decompensated and recompensated state). Depending on the results of the evaluation, the KCCQ may be employed in another study evaluating an optimized disease management program. For the needs analysis a semi-structured interview will be carried out. The needs of the patients will be included in the development of a patient education program which will be further evaluated in the above-mentioned disease-management project.

Key words:
    quality of life
    needs
    congestion heart failure

Projekt period: from 03.2003 to 02.2005

Funding institution:
Sonstige Stiftung ( Grimmke-Stiftung )

Links:
RFB-Homepage